A new norm · Everyday life. · JDRF

Sometimes I think it’s a dream.

Every once in awhile, usually while I’m getting dinner around, it hits me that this carb-counting stuff is forever.

Tonight was one of those nights. I don’t really even know how to explain it. Maybe it’s because I’m so used to counting carbs that, for a mere second, I think, “Wait! I don’t really have to count how many carbs there are in this meal.” But I really do. I have to count carbs to make sure Luke’s pump can calculate the correct dose of insulin. To keep Luke alive. At every.single.meal.and.snack.

20g for 8 dino nuggets.

20g for 10 tater tots.

I never count the veggie carbs. It’s never very many anyway. Tonight it was green beans.

Sometimes it’s a perfect calculation. Luke’s blood sugar barely moves. “WOW! Go us!”

Other times, even though we counted every carb, his sugar skyrockets. Or drops below range. Certain foods make him high almost every single time he eats it- pizza, ice cream, pasta. Especially pasta. Pasta is his favorite, of course. It doesn’t stop us from letting him have it, though. Most of the time we’ll add a little extra insulin to cover that spike.

I so look forward to the day when we hear there has been a proven cure found. I’m so grateful to JDRF and other scientists who aren’t giving up on this day.

But for now, we’ll keep counting carbs. We’ll keep calculating insulin doses. We’ll keep on keeping on.

(But could you hurry up on that cure, please?)

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