I recently read on Facebook of a Go Fund Me campaign by a guy who needed to raise money for a month’s worth of insulin. (It has since been deleted from Go Fund Me.) Then, a little farther down in the comments, it was noted that it was too late and he had died because… Continue reading The cost of Type 1 Diabetes.
powerless. adj., without ability, influence or power This describes how I’ve felt for the past four days. No, this describes ME for the past four days. If you know me at all, you know that doesn’t bode well for me. I like to be in control. I like to fix things that need fixed. And I… Continue reading Powerless.
It wasn’t that long ago I said to Joel, “We should have backup insulin just in case Luke’s pump ever stops working.” When I said that, I didn’t expect us to need that backup plan so soon! Yesterday, just before dinner, Luke pulled out his pump to bolus for the sandwich Joel made him. I… Continue reading Always have a plan.
Luke came home early on Wednesday, skipping swim practice, because he didn’t feel well. He couldn’t really explain it… he was dizzy. He was nauseous. He had a fever. He felt like he was living inside of a bubble. He stayed home from youth group that night and school the next day. This was the… Continue reading Being sick.
I have had several people contact me to tell me about a friend or relative that was just diagnosed. They almost always ask the best way they can help. I usually have three suggestions. Be available. When we were diagnosed, we had so many visitors come up to see us. We were forever asking the staff for more… Continue reading Three ways to help a family who was just diagnosed.
Some of you have kids who have already started back to school. Some of your kids will be headed there in the next couple of weeks. And some of your kids still have a month or more of summer (you have my permission to disregard this blog post). We start next week. I go back… Continue reading Back-to-school checklist.
In my last blog post, I shared about my hunch that Luke had Type 1 Diabetes, based on his symptoms. I was so fortunate to have not only heard the signs and symptoms of Type 1 Diabetes, but to have tucked them away in one of the cabinets of my brain. What I didn’t know was… Continue reading DKA.
Luke had his quarterly endocrinologist appointment a week ago. I felt like we were starting to come out of honeymoon because we were seeing a lot more sugar levels on the higher end of his range. I didn’t feel like we were seeing many on the lower end, let alone below his range. Because of… Continue reading 4.6%, say whaaaaat?
The day Luke was diagnosed, and we were all settled in to our temporary living space, I quickly learned what an incredible, amazing, HUGE support system we have as a Type 1 family. As soon as we left the doctor’s office with the official diagnosis, I called four of the most important people in my… Continue reading One big family.
“I know what an insulin pump is, but what is this MDI business?” This is one of the very first questions I asked my online Type 1 family. I learned that the pump and MDI are the two ways a diabetic can receive insulin. MDI = Multiple Daily Injections Some Type 1 Diabetics choose to do multiple… Continue reading Insulin pump vs. MDI.