Awareness & advocacy · Signs & symptoms. · The beginning

This is why I blog.

The Facebook memories that are popping up from two years ago make me wish I better knew the symptoms of diabetic ketoacidosis (DKA) back in 2015. I vaguely knew the symptoms for Type 1 Diabetes- mainly extreme thirst and frequent bathroom breaks for Luke. I think knowing the symptoms of T1D is what saved his life,… Continue reading This is why I blog.

A new norm · Awareness & advocacy · family · T1D 101 · The beginning · Tips & tricks

Three ways to help a family who was just diagnosed.

I have had several people contact me to tell me about a friend or relative that was just diagnosed. They almost always ask the best way they can help. I usually have three suggestions. Be available. When we were diagnosed, we had so many visitors come up to see us. We were forever asking the staff for more… Continue reading Three ways to help a family who was just diagnosed.

Everyday life. · family · The beginning

Mourning into dancing.

I’ve already mentioned the fact that now, more than ever, I am loving Facebook’s memories every morning. Last week and on Luke’s diaversary, the things that popped up on my wall were a little scary… a little sad. Today, though? I looked through today’s photos and had joy. I feel like I’m a little weird, looking back… Continue reading Mourning into dancing.

Awareness & advocacy · family · The beginning

It’s bittersweet.

I love that Facebook shows “Memories” every day. It’s fun to look back and see what happened a year ago, two years ago, five years ago. Lately, though, it’s been bittersweet. The past week or so Facebook has reminded me of Luke’s last elementary activities as a 5th grader… his spring orchestra concert… end-of-year celebrations… Continue reading It’s bittersweet.

A new norm · The beginning

Whoa, that hit me like a ton of bricks.

I normally work really hard on our annual family scrapbooks, using fancy Photoshop & all. Our 2015 book, though? It’s not so fancy. It was a whirlwind of a year, so I was 100% okay with last year’s book being very simple. Simple was a good thing after everything we’ve been through this year. I… Continue reading Whoa, that hit me like a ton of bricks.

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Lots more learning and then we go home!

Last night was a much better night in the sleep department. Being detached from all things beeping and tangling, Luke could move around freely. I’m sure being utterly exhausted didn’t have anything to do with it. Today was another day of learning and visiting. We learned a bunch of math. We learned what is good… Continue reading Lots more learning and then we go home!

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It’s a new day…

June 14, 2015 I hadn’t mentioned it in any of my previous, but Luke wasn’t allowed to eat once he was diagnosed as T1. He basically hadn’t eaten anything since June 10th. It didn’t bother him until he was hydrated & insulated (ha ha… see what I did there?). Most of Saturday he was STARVING.… Continue reading It’s a new day…

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Nighttime at the hospital isn’t fun.

June 13, 2015, Part 5 Do you know when everything has settled down and quiet, your mind sometimes doesn’t settle down and get quiet? Sometimes it goes into overdrive. It’s nearly impossible to get quality rest when your son is laying in a hospital bed next to you. Especially when, just 12 hours earlier, he… Continue reading Nighttime at the hospital isn’t fun.

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June 13, 2015, Part 4 They wheeled us right into our room and got Luke settled into his bed. The next hour or so was pure craziness. I had a nurse asking questions for her records. I had a doctor asking questions for his records. There was a student doctor asking random questions in between… Continue reading Admitted.

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First ambulance ride.

June 13, 2015, Part 3 We waited quite awhile for the ambulance to arrive to transfer us. When they finally arrived, they had to strap Luke on the gurney to keep him from escaping, er, I mean rolling off. Only one of us could ride in the ambulance with him. Luke and I shared our… Continue reading First ambulance ride.